tag:blogger.com,1999:blog-6101428891754090864.post4162303577872257662..comments2023-10-04T03:15:13.485-07:00Comments on Boo-Bee Trap: "The Harsh Reality" of Pink (?)TChttp://www.blogger.com/profile/08630204465578778698noreply@blogger.comBlogger5125tag:blogger.com,1999:blog-6101428891754090864.post-92134725766967568252011-12-13T07:58:09.211-08:002011-12-13T07:58:09.211-08:00@Nancy - which is why we blog. In the blogosphere ...@Nancy - which is why we blog. In the blogosphere we don't need to stay quiet. You bring up an integral aspect to the cancer cunundrum -- "permanently damaged by the treatment." People forget that "treatment" does not equate to "cure." Refer to the SABCS paper on the combo of hormonal meds to increase the "survival" of mets patients by six months. But what is the quality of life for those clinging to the 6 months? The picture in my mind's eye is a hamster on a wheel.TChttps://www.blogger.com/profile/08630204465578778698noreply@blogger.comtag:blogger.com,1999:blog-6101428891754090864.post-47588866414182062792011-12-12T13:10:30.548-08:002011-12-12T13:10:30.548-08:00TC, You raise such an important point here. The tr...TC, You raise such an important point here. The treatment of this darn disease is really really tough. It's odd that we often go into this treatment feeling (and maybe even looking) pretty good and come out, well, permanently "damaged." And I know what you mean about the "staying quiet." Sometimes it's just easier that way isn't it?nancyspointhttp://www.nancyspoint.comnoreply@blogger.comtag:blogger.com,1999:blog-6101428891754090864.post-84674761881748172062011-12-12T08:14:52.233-08:002011-12-12T08:14:52.233-08:00Triple "C" - Agreed. Even without the ch...Triple "C" - Agreed. Even without the chemo & radiation, I contend with monstrous fatigue - due to low RBC & WBC. And nearly constant pain. I never wake up in the a.m. feeling good. It takes me a couple of hours to get "charged" enough to get going. And, I still get..."but you look good" (and that is what is so important!) I also find it interesting that if I make any side comment through a work day about being "tired" I often get met with "you're tired, I spent all night cleaning and cooking." Or something similar. I stay quiet, because everyone has their own individual threshold for stress and fatigue. I also think that for those close to us (e.g. your in-laws) it is a form of "coping" with our chronic situation. We scream to not be treated as a "cancer patient" -- so we should not grumble too much for getting what we ask for (LOL!)TChttps://www.blogger.com/profile/08630204465578778698noreply@blogger.comtag:blogger.com,1999:blog-6101428891754090864.post-49812184537797655752011-12-12T05:35:21.276-08:002011-12-12T05:35:21.276-08:00Treatment is hard, there's no doubt about it. ...Treatment is hard, there's no doubt about it. The stupid thing is unless people can physically see the obvious signs like hair loss, weight loss or other visible sign they find it difficult to comprehend just how relentless it is. Right now my big bugaboo is monstrous fatigue caused by low white blood cell counts. Sunday's usually my crash day, and yet I<br /> still find myself having to explain why I can't make Sunday dinner with the inlaws. They just don't get how debilitating it really is.CancerCultureChronicleshttps://www.blogger.com/profile/07650364997423007994noreply@blogger.comtag:blogger.com,1999:blog-6101428891754090864.post-49446873672545308182011-12-11T18:08:32.416-08:002011-12-11T18:08:32.416-08:00TC,
Thank you for such an honest posting. I agree...TC,<br /><br />Thank you for such an honest posting. I agree that the blogging community that we are a part of is filled with amazing women. Even though I haven't met any, I still feel close to them.Beth L. Gainerhttps://www.blogger.com/profile/08780737397716824019noreply@blogger.com