Been reading your blog; won't post anything on it for all to see since there is no mention of us on it.
Prologue ~ I believe I am beginning to understand who the true cancer "survivors" are. It is not the ones with the disease. It is those who surround us.
I am so glad you are reading the blog. I do mention you guys in “.......” in July. If I am not railing against the Pink-Industry, I mostly mention Husband and kids, I think it is because managing their day to day life with my chronic disease is a FT job.
You sound offended. No slight in
any which way is intended, has been intended, or ever will be intended. I truly
am sorry if you are feeling slighted in any way or form.
My writing is what I am feeling about living with a chronic disease, and the blog helps me distill those feelings, whether they be outrage, disgust, euphoria, sadness, or even pedagogical and snarky.
I know that it appears I am being selfish about my cancer.
I am.
But not because I am trying to be hurtful to others.
When I am asked, I will share what I feel I am emotionally or psychologically capable of sharing at a given time. It is difficult for me, most times, to "share" when I am speaking with people. Even with Husband it can be an uncomfortable subject...to acknowledge that my life has been reduced to a 20% chance of surviving 5 more years. ONLY if I do / did what conventional medicine offered...which I chose not to.
It is easier for me, and always has been, to write. So, now I blog. And for those who want to “know” what is up with me, my blog is a forum in which they can delve at their leisure, without ME getting in the way.
My writing is what I am feeling about living with a chronic disease, and the blog helps me distill those feelings, whether they be outrage, disgust, euphoria, sadness, or even pedagogical and snarky.
I know that it appears I am being selfish about my cancer.
I am.
But not because I am trying to be hurtful to others.
When I am asked, I will share what I feel I am emotionally or psychologically capable of sharing at a given time. It is difficult for me, most times, to "share" when I am speaking with people. Even with Husband it can be an uncomfortable subject...to acknowledge that my life has been reduced to a 20% chance of surviving 5 more years. ONLY if I do / did what conventional medicine offered...which I chose not to.
It is easier for me, and always has been, to write. So, now I blog. And for those who want to “know” what is up with me, my blog is a forum in which they can delve at their leisure, without ME getting in the way.
And for those few who read, commenting is voluntary and
appreciated, but never necessary or required.
Thank you for sharing your feelings with me. Your one cryptic, yet pointed, sentence did speak volumes.
I may not meet your or anyone else's expectations, but do know it is not because I am trying to hurt anyone in any way. Or, that I am being consciously self-centered. I think I do understand how challenging it is for you - to be a spectator while I take this journey. You are not the only one who, at times, feels "left out." Husband, too can only be a spectator. Cancer is not a "team" sport. And, admittedly, I am not a good Team Pink player.

But it does not mean that I don't love you, and appreciate you. I love you, as me. That's all I can do.
I may not meet your or anyone else's expectations, but do know it is not because I am trying to hurt anyone in any way. Or, that I am being consciously self-centered. I think I do understand how challenging it is for you - to be a spectator while I take this journey. You are not the only one who, at times, feels "left out." Husband, too can only be a spectator. Cancer is not a "team" sport. And, admittedly, I am not a good Team Pink player.

But it does not mean that I don't love you, and appreciate you. I love you, as me. That's all I can do.

