Showing posts with label planned parenthood. Show all posts
Showing posts with label planned parenthood. Show all posts

Friday, August 3, 2012

Overselling and Promoting Over Diagnosis...and the Winner is ?

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Breast Cancer: Komen Oversells Mammograms, Doctors Say
abcnews.go.com
Medical Journal Column Calls Pink Charity Out for Bad Math

Two Dartmouth Medical School professors have called out Susan G. Komen for the Cure, accusing the pink-ribbon organization of overstating the benefits of mammograms in its advertisements.

The accusation comes about six months after the breast cancer charity came under fire for cutting Planned Parenthood funding, which it claimed was not a politically motivated decision. According to the foundation's most recent Form 990, it netted about $114 million in 2010.

The ad in question ran last October in several major magazines, and said, "The five-year survival rate for breast cancer when caught early is 98 percent." Its not. It's 23 percent."

"It sounds like you'd have to be crazy not to get screened. It sounds like a huge benefit," said Dr. Steven Woloshin, co-author of the article in BMJ, the British medical journal. "The statistic is totally distorted."

The problem is that a five-year survival rate is easy to manipulate, he said. The ad compares five-year survival rates for early-stage cancers and late-stage cancers, which Woloshin said is not a meaningful way to measure the benefits of screening. Here's why:

Suppose three women are diagnosed with breast cancer at age 67 when a doctor finds a small lump, and they die of the disease three years later, when they're 70. That five-year survival rate is a miserable zero percent because no one lived five years past their diagnosis dates.

Now, suppose the same women were diagnosed when they were 64 because the cancer showed up on mammograms, but they still die of breast cancer at age 70, he said. The new five-year survival rate is a triumphant 100 percent, even though the women actually survived cancer the same length of time. They just didn't know how long they had it.

"If there were an Oscar for misleading statistics, using survival statistics to judge the benefit of screening would win a lifetime achievement award hands down," Woloshin and his co-author Lisa Schwartz wrote.

More useful numbers, he said, are derived from randomized trials. They show that 0.53 percent of women in unscreened trial groups died over 10 years -- compared with 0.46 percent of the women who were screened. That's not much of a difference, the authors said.

This problem is further exacerbated by overdiagnosis, which happens when mammograms detect cancers that never grow or cause symptoms, he said.

For every woman saved by an early screening, two to 10 are falsely diagnosed, the authors wrote. This means patients endure biopsies, chemotherapy and radiation even though they don't have a threatening cancer.

"There's no way for an individual to know they've been overdiagnosed," Wolostin said, explaining that the only way to tell whether this has happened to a specific person is if that person is diagnosed, does not seek treatment and eventually dies of something else.

Doctors have seen evidence of overdiagnoses in long-term follow-ups to randomized trials and analyses of population data, he said.

In response to the article, Komen's Vice President of Research, Chandini Portteus, stood by the foundation's stance on mammograms, calling the screenings "the best widely available detection tool that we have today."

She said Komen has contributed funds toward even earlier detection.

"We think it's simply irresponsible to effectively discourage women from taking steps to know what's going on with their health," Portteus said, adding that the foundation is also funding research to determine which tumors will spread.

Woloshin said his article is not saying mammograms are bad.

"Some people benefit while other people are harmed," he said. "If you don't know, you can't make an informed decision."

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What this article, as well as Komen do not express, is that mammograms can also be ineffective as a diagnostic tool. My form of b.c., invasive lobular - which started as a nearly imperceptible node, was consistently misdiagnosed as "fibrous breast tissue" for years before it grew to 6.2 cm and a biopsy followed by a MRI confirmed its true nature. My history of mammograms gave both my doctor and myself a false sense of health. Until the tumor insisted on recognition.

Additionally, this article and Komen do not address the cumulative nature of radiation - which is the energy behind mammograms; and our bodies inability to naturally purge this and all of the other daily exposures to radiation we encounter. All of which create a toxic environment within our bodies where cancer can happily proliferate.

I personally know many women who have been "diagnosed," via mammograms, with stage -0- / in-situ carcinoma (a pre-breast cancer state). With this diagnosis they have gone on, with full encouragement of their medical teams, to undergo the slash/burn/poison protocol. Their outcome: "cured." Yet, they all seem to be experiencing some after"gift" of their treatments -- no one should leave a party empty-handed. It begs the question: what were they actually cured of?

And, if they and their medical team had not relied so heavily on mammograms, would they have made a different choice?
                                                                                                    ~ TC

Thursday, February 2, 2012

EXCLUSIVE to BooBeeTrap..."Ms. Brinker Bares All on the Latest Battle of Political Agendas: Profit vs Women's Health (...not again!)"

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STOP the PRESS!!!!

With all the online flurry about Susan G. Komen, I felt I could not add anything original to the current virulent discourse. Then I was given the unique opportunity to interview Ms. Nancy Brinker, founder of Susan G. Komen. What a coup for an Anti-Pink Blogging Grumbler such as myself. Ms. Brinker would only allow seven (7) select questions in this exclusive interview. She wanted to to tap dance aroundjustify, put to rest all the speculation circling regarding Susan G. Komen's recent controversial decision to pull funding for breast cancer screening, medical referrals and mammograms for women who utilize the services of Planned Parenthood. A "set-the-record straight" tete-a-tete. Despite the sensitive nature of this topic, Ms. Brinker  PROMISEd ME that she would answer honestly on all accounts. A one-time only exclusive for all you Boo-Bee Trap fans!

All right it only took place in my head, and I didn't draft the questions - Nancy from Nancy's Point http://nancyspoint.com/susan-g-komen-for-the-cure-planned-parenthood-a-tidal-wave/ was the author of the insightful questions in bold, below. But wouldn't it have been refreshing - a candid discussion with Nancy G. Brinker!?

This is how it played out in my head:



1. Do you genuinely care about the health of all women? 

Old adage, "actions speak louder than words" - because of SGK's actions in this instance and in the way we have historically and consciously decided not to address issues, like metastatic breast cancer (you know...that loser cancer cause) I would think you already know the answer to this question....The answer is a resounding NO, not ALL women -- only the vocal right wing conservative non-minority women. You know, the ones that can actually afford to pay, or have comprehensive health care that pays, for breast cancer screening. And, of course those women that Rep. Stearn tell me are the "good women." He's been compling a list.

2. When did caving to political pressure from any source become acceptable for an organization like Komen, the self-proclaimed world leader in the fight against breast cancer?

It  all became acceptable when my little "nonprofit" greedily took money from companies that perpetuate cancer (by the wide spread commercial use of known carcinogens) -- it is a lucrative reciprocal business relationship after all. This discriminating myopia was reinforced when we got away with requisitioning a product, for profit and marketed to women, containing identified hormone disruptors. It was a brilliant business decision as it ensures our longevity as a necessary organization. BTW, I brought you a complimentary bottle of PROMISE ME, since I was informed prior to our interview that you are a stage IV cancer patient. Honestly honey, what harm can a little PROMISE ME behind the ears do to you in your situation? And make sure to share it with your daughters - if SGK is going to thrive through the 21st Century we need the next-generation.

3. Unfortunately, I have to ask, is this really about breast cancer, or is it more about pro-choice vs pro-life agendas and possible contributions Komen may or may not receive if they do not pull funds from Planned Parenthood?

It was an economy of scales decision: the extreme right-wing conservative political faction in this country hold more wealth than the minority/women population served by that sketchy organization, Planned Parenthood. SGK may well alienate the "liberal" financial base that is outraged by the burden and impact of our decision, but SGK will still be able to meet targeted fundraising goals through our now public support of these new BFFs. There is a great surge in the country to undermine efforts in making health care affordable and accessible to all, SGK does not want to be behind the curve on this surge.

4. Since many women rely on Planned Parenthood for all of their health care needs, do you really want to send the message you don’t care about them? What if they die from an undetected cancer? Don’t their lives matter?

They will be dead, duh! Our lawyers have advised us that since we are not obligated to provide this service. We are a nonprofit philanthropic organization so we don't need to do everything for everyone. Well, our lawyers advised that, because of our 501(C)(3)status, the surviving families of THOSE dead women will not have any legal causation for a wrongful death suit. So, in a nutshell, since there is no liability on our end...NO...they are not even a blip on our spreadsheets! Then there is the consideration of our new BFFs on the right. They showed SGK's board that statistically PP's target population have low voter turn outs, so they don't calculate on their spreadsheets either. Our messages is: this decision is a win-win for us and our well-heeled BFFs. Besides, I have truly exaggerated the impact that SGK has had in deterring breast cancer deaths over the last 30 years. Bottom-line (don't you just love that term!) my obligation is to our financial stake-holders...oops, maybe I shouldn't have said that, that may be in violation of SGK's by-laws as a 501(C)(3). You will delete that last statement, right?



5.  And why the sudden change of heart? Komen has been partnering with Planned Parenthood since 2005. That’s seven years. This “investigation” came to the forefront in 2011. Grants from Komen totaled around $680,000 last year and $580,000 the year before, allowing Planned Parenthood to provide breast cancer screenings and other breast-health guidance services to more women in need at 19 of its affiliates.

Ms. Handel - our new, very out-spoken, vociferously anti-choice crusader, was hired 18 months ago. Part of our employment contract with her was that we would indeed make strides to transition away from our prior 6 year support of screening, referrals, etc. to THAT population served, largely in-part by Planned Parenthood. This was a real stickler for Ms. Handel. Well, Ms. Handel is a real go-getter and rallied the dormant politicized myopic agendas of our other board members and took care of business faster than we could all imagine. Securing her for SGK has been a real feather in our philanthropic cap.

6. Shouldn’t this be something Komen is proud of, not halting?

Despite what I said to the prior question (#4) - because I really don't have any qualms being inconsistent or contradictory, SGK continues to be proud of the significant inroads we have made over the last 30 years in striking a significant blow to the prevention and cure of breast cancer...even if over 40,000 women die of MBC every year in this country. Interestingly, no matter how many 3-day walks we hold, that number really has not significantly changed in the 30 years we have been in existence! I need to talk to the board about stepping up production of  BPA filled plastic pink water bottles...but I digress. Well, I am proud to be fulfilling the promise I made to my sister on her deathbed...um...that only a SELECT group of women who align with my political & religious ideologies will be afforded access to potentially life-saving health care! Between you and me, it is a good thing Susan is not here, she would so rip me a new one right now!

7.  How do you justify eliminating funds to support Planned Parenthood while also proclaiming commitment to your mission?

I am proud to be fulfilling the promise I made to my sister on her deathbed...um...that only a select group of women who align with my political & religious ideologies will be afforded access to potentially life-saving health care! Oh cr*p...did I just say that out loud, twice? This interview is so over - when you have this much Botox in your face, it really is hard to pontificate for long periods. Don't forget your PROMISE ME!